Why do bad things always seem to happen to the truly GOOD people? This is the question I keep playing over and over in my mind when I think of Uncle Spear and his situation. A couple nights before leaving for Paris we got news that my Uncle Spear (my dad’s brother) has been diagnosed with ALS (Lou Gehrig’s Disease). ALS, I learned, is a neurodegenerative disease that usually attacks both upper and lower motor neurons and causes degeneration throughout the brain and spinal cord. Basically, from what I can tell, your body shuts down but your brain stays 100% fine.
(This is Uncle Spear wearing the yellow shirt he ALWAYS wears around me just to annoy me because I think it’s sooo ugly!)

(During our wedding reception roast Uncle Spear poked fun at me, of course, then gave me my favorite shirt of his)

Throughout our times together Uncle Spear has always been tough on me. He pokes fun but he also pushes me to do better, to be better. I knew, even though sometimes I let his jokes get the best of me, that he was trying to teach me life lessons and to push me to be the best EMILY I could be. He is the type of man that you hope to find for yourself to marry someday (and didn’t I? I married a true family man, Godly man, and a man filled with humor…all things which Uncle Spear is!) and the type of man that you pray your son grows up to be.

Even though it is so difficult for me to think about, I know I have to face what is happening. If I ignore or “deny” that he is going through this then I will be the one to miss out. I’ll miss out on spending precious time together and I’ll miss out on helping him anyway that I can.
I know that Uncle Spear will be here for many, many more years. He will push faaaar past the 3-5 year timeline the doctors have given him. He has always been in incredible shape and has an amazingly optimistic outlook on life. He has a wife who adores him and who he loves with all his heart. He is surrounded by his children and grandchildren who will keep him smiling and help him with everyday things he may need. But more than anything else he is a child of God. He and Aunt Cheryl both love the Lord and I know he will lean on God and his faith through all the trying times ahead.
(Enjoying our yearly New Years Eve dinner at Rudolf’s)

I’m asking everyone who reads this to please, please pray for Uncle Spear and for his family. Please don’t just pray once, pray as often as you can! This isn’t something that will go away tomorrow or the next day. It’s something that will probably only get tougher and will require us to pray even harder.
There is a man here in Valdosta that the Parker’s know currently living with ALS. I plan to try to contact him and see if there is anything he can offer to help. It’s such a rare thing and maybe he has picked up on something that would be helpful to my uncle. If anyone else knows anything that would be great too as I may not live close to him and not be able to help with the everyday things but I can pray and I can hunt for information that may help!
Zach and I both hope we can make plans to take Kye up to South Carolina for a visit soon and we both feel so blessed to have Uncle Spear as a part of our lives. Even in the short time Zach has gotten to know him he says all the time that Uncle Spear is one of his favorite people in my entire family! We enjoy stopping through on our way to ski and spend a night with him and Aunt Cheryl. I can’t wait to visit them again and spend more time sitting around talking and looking at all the birds together.
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I totally remember him at the roast, he was quite a character that night 😉 Seth and I will be praying for him. The only thing that I do know about this disease is a friend of mine (Nicole Steel) had an aunt who had this condition and she taught herself how to do the alphabet with her eyes so that she could still communicate with everyone it was really neat. I guess your eye movement is one of the last things that shut down. She was able to talk and communicate for a while like this. hope this helps.